Sunday, 13 November 2011

Decision to Withdraw




Topical Corticosteroid Treatment Sufferers


[Eczema] Reoccurring skin rashes characterised by; Redness, Swelling, Dryness, Flaking, Blistering, Crusting, Cracking, Oozing, Bleeding.
This is the body's way of giving you a signal that something is wrong on the inside 

Whilst reading this, think of the skin and the gut (nervous system) as the same organ. What is happening internally, is reflected externally.

If you have used Topical Steroids on a spot of your body, eczema (skin rash) seemed to have spread over your skin over months/years, and you are using more Topical Steroids to get the same or no relief

If you had eczema on your body, it is getting worse, holds the heat in and you are not getting any relief from the Topical Steroid treatments

OR

If you have not reached this point of addiction YET

Please Read On

Eczema Created By Topical Steroids

Topical Steroids destroy/damage the quality of the NO (Nitric Oxide) in the body.
- NO dilates the Capillaries (Blood Vessels) allowing more blood flow to the heart.
- NO acts as a chemical messenger in the nerves and immune system.
- NO is released to protect and repair the cells in response to the skins exposure to ultraviolet light, infection and injury.

Eczema created by Topical Steroids for treatment of  E.g. Psoriasis, Vitiligo, Eczema, Atopic Dermatitis, Phimosis, Acute Radiation Dermatitis and Lichen Scleroses

Topical Steroids kill the cells, blood vessels and the signal transmitters in between. The skin forgets how to 'act' like skin, leaving a physically damaged and traumatised organ in the body.
Topical Steroids also change the major pathways, where the arrival of a chemical signal to a cell turns into a new pattern of gene expression.
In this case, the hormone (steroid) is applied topically, which activates a series of messengers as shown in the below diagram.





If you have used Topical Steroids to suppress the symptoms of Eczema, you most likely have 2 different types of eczema (skin rash) now.

1) Eczema caused by stimulation or intolerance in the body (the initial reason for using Topical Steroids) explanation below.

2) Eczema caused by Topical Steroid Cortisone treatment.

Link To Powerpoint Presentation on The Affects Of Cortisone

13.11.2011 - Decision to withdraw from Cortisone

Finding Out What Cortisone Does To Your Body Through Withdrawal

Jake, 27 (my partner) a user of Cortisone (Elocon - cream and Prednisolone) and petroleum based product (Dermeze) for 16 years.

Jake's skin had built up resistance from using these products, and found he had to use more and more each time to get the same or no effect. His skin was red, addicted, and he could not live without topical steroids.

Jake was advised by dermatologists to only have cold showers/baths, and has been doing so for the past 3 years. He found that his skin would flare up if he did anything but wash under cold water, and had to be very strict on maintaining his skin every day. The dermatologist also advised him to put bleach in his baths.
Jake's skin was thinning each day, and it becoming white from the bleach in the bath Cortisone.

Jake and I had looked into the effects of the products he was using, needless to say, we figured out his body was not in a good position from this drug.

Jake decided to withdrawal from the Cortisone the day the above photo was taken... Yes, his body was covered in eczema... Do you really think the Cortisone had done him any justice over the past 16 years??

A few weeks later, Jake consulted with my mother, Doris Were (Clinical Nutrition Practitioner) who advised him of his options and informed him of the effects of sudden Cortisone withdrawal and the long term effects of internal and external Cortisone use.

Jake lived at my parents house for the first 7 weeks of withdrawal from Cortisone so my mum could look after him.

I worked during the day and would drive to the country to sit up with Jake all night whilst he shook, cried and scratched. I held his wrists through the night to stop him from harming himself with his nails. My mum cooked, cleaned, comforted and worked on Jake every day for those 7 weeks.

From the unspoken side affects of Topical Steroids;
Jake's adrenal glands/system nearly failed
His blood vessels were damaged/no longer active
Body cells were the quality of an almost dead persons
Jake had not known for 16 years what normal bowel movements should feel like
Most Lymph nodes clogged/ stopped working
Close to having Lymphoma and Cushings disease
Damaged HPA Axis
Damaged tissue
Very low functioning Liver
Deteriorating Teeth and Bones
Sensitive/unhealthy gums (bled a lot when eating an apple/brushing teeth).
Damaged gut and kidneys




From withdrawing from Topical Steroids Jake has endured
Convulsing
Uncontrollable shivering
Shedding his whole body of skin every day
Constipation
Suffered from severe oedema
Severe sensations of something 'crawling' underneath his skin
Yellow toxicity secreting out of his skin
2 perforated eardrums
Blurred vision
Memory loss
Adrenal fatigue
1 infected finger and nail loss
Hair loss (over whole body)
Insomnia for 1 month.

Jake's progress through this hell has been a remarkable journey to watch and support, and we are both so grateful of all the doctors, 6 different Network Spinal Analysis practitioners, and of course my parents who have supported and given us every opportunity in the world to heal Jake.

Jake has used an asthma puffer and preventer for as long as he can remember, and since week 2 of withdrawal he has not has asthma.

Jake has always wanted to wear shorts without feeling self conscious about his bleached white skin and eczema... and we are going to make this happen.

Withdrawing from Cortisone is a very brave thing to do, and I believe it's important to research and find as much physical, medical, emotional and financial support as possible. Put yourself and your immune system in the best possible position to heal.

Many other sufferers are now taking on our treatments for Jake, as he seems to be healing significantly  compared to other withdrawal patients.

Since I started this blog, thousands of people world wide have viewed it. I know there are people out there looking for answers, please connect with us so we can bring awareness to the world of the effects of Cortisone suppressing the symptoms of eczema.

What are we not told about Eczema and the Effects of Cortisone?


The gut lining is shaped like sea anemone, the tendrils are called Villi.
When we digest things such as gluten, dairy, sugar and alcohol; it sheer's off (damages) a bit of the top of the Villi in the small intestine 'gut' lining. This would be OK if we were all extremely healthy so the gut could repair, but the Villi repairs very slowly compared to how much damage is caused to it.

When the gut lining is constantly battling toxins from drugs or food that it has trouble tolerating, it cannot repair the Villi quickly enough and the Villi gets more damaged until it flattens out. Fragments of partially digested food begin to leak through the 'Villi wall' lining into the circulatory system.
The lymphatic system cannot clear the blood of these toxins as it is already compromised by metabolic bi-products and the epidermal damage of Cortisone.

The 'itch' is formed by irritation of toxins running in the circulatory system; arteries, veins, heart.

Eczema sufferers describe this feeling as something 'crawling' underneath their skin, therefore the want to scratch from the outside to rip their skin open to relieve the feeling.

In order to fix the 'itch' the gut lining needs to repair, and the liver and kidneys require support to heal and detox.

Doctors prescribe Cortisone to relieve the itch and heal the skin, which in fact suppresses the symptoms of the eczema and overloads the organs with the metabolic bi-products of the Cortisone. The skin becomes reliant on the Cortisone, which damages the whole organ of the skin, not just the part the Cortisone is applied to.
The patient becomes reliant on the Cortisone, and like an addiction it's near impossible to live without it unless you decide to withdraw. 


To heal the gut lining from the leakage from the damage by harsh antigens, dietary and nutritional assistance is needed.
Where as the focus of the medical model is on the symptoms, Nutritional Medicine addresses the eliminatory organs, healing of the gut lining and the factors that impact it. Our doctors don't tell us what the cause is because, really, it's not written in their text book. They prescribe this drug to suppress the symptoms without monitoring the patient by taking regular blood and urine tests, to assess organ function.
The Cortisone damages the HPA axis, body cells, lymph nodes, blood vessels, tissue, adrenal glands, overloads the liver, and creates the possibility of other diseases such as Lymphoma, Cushings Syndrome and connective tissue disorders.



For Information on nutrition relating to Cortisone damage in the body, see Post: Diet and Nutrition 
http://www.blogger.com/blogger.g?blogID=4609751979032185321#editor/target=post;postID=669004450791010201

34 comments:

  1. This is great information Liz.I have been close to someone recently who passed away after years of cortisone treatments and who suffered terribly as a result. It was even mentioned in the funeral eulogy as both an ally and an enemy, an enormous polarity!

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  2. Hi Liz and Jake,
    I really commend you both and encourage you to continue with your vision - being free to live happily in your own skin. Imagine the power of sharing your story with thousands and helping others to freedom from the monstrous lie that is the central premise drug based medicine. Why would we ever fall for the idea that adding chemicals into our masterfully engineered bodies could possibly bring about a positive outcome. From a fellow cortisone refuser. Philip

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  3. Lovely comments from you both.. Thank-you for the support and for the encouragement!
    Liz & Jake

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  4. Hello Liz

    You have our prayers. My name is Fay Farah Rahim, I am the co founder of the Asthma Allergies and Eczema Support Group for Malaysians. We have many cases of small children and babies already going through steroid withdrawal, using natural products, strengthening their guts and some like my own daughter has now better management of eczema. This article is such an eye opener as I am always bombarded by parents who would rather believe a DERM than me, a stay at home mother trying to manage my daughter's E effectively without steroids.

    I would like to seek your permission if I could translate this article into my own language and post it on my blog? I will back link the post to your article as reference

    Thank you so much from the bottom of our hearts
    https://www.facebook.com/groups/ekzema/

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    Replies
    1. Hello Fay,

      Yes I am happy for you to translate this if referenced correctly.

      Thank-you for contacting me, I have become a member on your facebook group.

      It sounds like you are working hard to turn this around in Malaysia, it's great to see you are making a difference.

      I am sure we will talk more of this in the future, my email is lizwere@live.com.au

      Go well,
      Liz

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  5. This is just amazing. I wish I could send this blog to every eczema sufferer out there. For now, I will send it to every eczema sufferer I know on the internet. Thank you so much for creating this to show those who are still suffering from this disease a way out.

    ReplyDelete
    Replies
    1. Hi Sweetgirl,
      Fantastic, spread the word! Thank-you for your kind comment.

      Liz

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  6. Liz, I cannot access the link. Can you put in on your blog? Thanks!

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    Replies
    1. Which link are you after Joey?

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  7. What an unbelievable story! It sounds just like a hard illegal drug withdrawl. Really incredible and how strong Jake was to get through it all. And how wonderful he had you and his parents to help him along the way.

    Our son had chronic eczema that just continued to get worse. We dappled in steroids, but found his skin got worse each time we stopped them - so he wasn't on them long before we put a stop to them all together. We then focused on his diet - found many food triggers, then other triggers like stress, heat, seasonal allergies, and detergents. He's much better today.

    So happy to hear your story!

    I have a page on my blog where I link to those sharing their stories about eczema, allergies, or asthma. Would you like to link up?
    http://itchylittleworld.wordpress.com/blog-hop/

    Jennifer
    http://itchylittleworld.wordpress.com

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    Replies
    1. Hi Jennifer, definitely link up.

      It's fantastic you realised the harm of this drug before it took hold.

      Great to connect with you,
      Liz

      Delete
  8. Thank you for this blog - my partner suffers from chronic eczema all over and it is heartbreaking to watch the pain that he suffers (especially when applying certain treatments which causes his skin to feel like it is burning). I have been trying to find different ways which he could manage the condition as his skin is now incredibly thin to the point where it may be beyond repair. Thank you for sharing as you have now given me hope that we can find an alternative to steroids.
    Many many thanks and prayers,

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    Replies
    1. Hello Anonymous!

      I am so so sorry, I could not see this message because you had gone into my 'spam' folder, I only figured this out when another anonymous user posted last night!

      I'm happy to talk via email if you'd like?

      lizwere@live.com.au

      Liz :)

      Delete
  9. hi i was wondering how did the eczema heal after he went through the cortisone withdrawals? did he do some type of strict diet for several months? and how long did it take to fully heal?
    because i have been dieting to heal my gut/eczema and theres a lot of ups and downs my skin can heal to a healthy state from my strict diet and the next day im itchy all over and bleeding and i start from the bottom again
    i want to know how long these ups and downs of the healing process consists for
    -thanks

    ReplyDelete
    Replies
    1. Hi Anonymous,

      Maybe come and join us at the itsan forum. There are many people there withdrawing from cortisone, all experiencing different time frames etc.

      https://groups.google.com/forum/#!forum/itsan

      To answer your question though, Jake's eczema is still healing. His whole body has been hammered for 16 years with drugs, and I am of the belief that his whole body will be fully healed in 2 years, his internals will take the longest, we are aware of this because of all the blood tests he has had.
      This is the info on how much work we have done with nutrition, and what he does not eat.
      http://www.blogger.com/blogger.g?blogID=4609751979032185321#editor/target=post;postID=669004450791010201

      Perhaps there is something you are missing? allergy wise? perhaps you are eating something/exhaling/touching something you are allergic to?

      Are you experiencing 'flares' from withdrawal? Jake never really experienced flares, and my belief is because we detoxed him so much at the start. But all of the itsan forum member are/have experienced flaring.

      Come join in the forum, or just have a read of all the topics. I am of the opinion that it takes serious and intensive work for a long period of time.

      Are you taking probiotics? are you eating enough protein?

      Liz

      Delete
  10. i joined the forum thanks
    i am not sure why i am getting these flare ups
    well my skin is definitely not as bad as jakes but its all over my body, and i use cortisone probably every couple weeks
    just from strict dieting i went from full body rashes to only small parts of my body. But i still get flare ups every week, then my skin goes back to being normal. i was wondering if these are healing stages im going through?
    i dont think im eating anything i would be allergic too, i am just highly alergic to dusts and molds which are hard to avoid.
    and Yes i am taking pro biotics and a little protein everyday
    thanks

    ReplyDelete
    Replies
    1. It is normal for you to be experiencing the flares. If you read through the forum topics, you'll see that about 80% of the people on there go through these regular flare ups.
      I also just posted on a topic 'Requested Jake Info' on the forum. This explains the lengths we have gone to and why.
      I have posted that topic because I get at least 1 - 2 new people every week emailing me about what we have done, but it is too much for me to repeat myself to everyone.
      Come join in on the discussion there. If you have any concerns, they will be straightened out on the forum. The people there have been through the withdrawing process for a long time now, so they know every symptom you can experience, and most people experience the same, although to different measures.
      You don't have to post your real name, join in under a fake name if it make's you feel comfortable. But the people there are great and I skype with a few of them weekly.
      I assure you though, you are experiencing normal healing processes - although I believe there would be things you could do to detox so your body does not flare, as we did for Jake. I wrote this on the forum though, catch you there. Liz

      Delete
  11. Eczema is a form of serious skin condition that can cause some a lot of grief as there is some pain involved when the condition worsens. Eczema Symptoms

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  12. Wow. I read this and wanted to scream and cry. I have been battling ecezema for 40 years. ..now my daughter who 6 is suffering.where can I find information on diet and products to relieve the skin while we heal that's safe?

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  13. hi liz,i am currently withdrawing from the use of elidel. i developed some kind of pimply rash. it is my 10th day since stopping elidel. do you think the pimple like itchy rash developing on my face is due to elidel? and do you think this will stop popping out? thanks

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  14. Thank you so much for this blog.
    I honestly cried reading about Jake's suffering, because I could totally relate to it.
    I'm so happy that he's better now, and hope I can heal as well.
    I used cortisone, elidel, and took some prednisone when flare-ups got too bad, and never really understood the negative effects. Thank you for stressing the severity of its usage.

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  15. Wow. This is so great that I find so many different sites, which all say the same story.
    The most annoying thing is that nobody understands what is going on and THEY DO NOT CARE not even the fucking dermatologists, they just prescribe the steroid creams. FUCK THEM ALL

    ReplyDelete
    Replies
    1. Hey Anonymous, well a. it's because the drugs companies are so rich an powerful and b. because Steroids are the only thing available for doctors to proscribe as a quick fix, which is what our medical model is about.
      It truly is sad.
      If you are going through this too, make sue you document it so you can help others in the world like yourself... it's the only way we will stop this madness.
      Libby

      Delete
  16. I'm a 29 year old male from the UK and have suffered from eczema all my life and have, since being four years old been prescribed all kinds of Cortisone treatments. Yesterday was a bad day for me I was at 'cracking point.' When i found this blog I couldn't believe it! I am so shocked at this information. Even more so that nothing is being done about it on a national scale. I feel so let down by my personal treatment by the NHS that I'm in the process of starting a legal pursuit. I get prescribed these treatments still, WEEKLY and have done as I said all my life I've seen many Doctors and Dermatologists in England, Wales, Scotland and even aboard and THEY ALL, then and now still issue me the same treatments. This kind of F*ck up should carry a lot more 'weight', people should be made more aware to stop further suffering.
    I really hope this works for me because for EVERYDAY for nearly thirty year; feeling uncomfortable in your own skin, wanting nothing more than to tear it all off, will and does make you go a little crazy. It effects me in many ways a major one for me and my family is my anger. I'm slowly learning to control it and recognize it's my skin's uncomfortability that makes me short tempered and that my loved ones only want to help.

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  17. Hey Justin, glad you found the answer. I suggest you go to itsan.org and have a look at the info and the forums there, there's hundreds of people going through what Jake did.
    Good luck mate
    Libby

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  18. Hi Liz,

    I just stumbled upon your blog and i want to thank you for publishing this. I have been using hydrocortisone and tacrolimus for the last 3 years and i feel like my eczema is getting worse. And i've just stumbled upon your blog and made the decision to start using natural remedies to help treat my eczema. Thanks to you both for being an inspiration!

    Emi, from Malaysia

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    Replies
    1. Hi Emi, sorry I have only seen your comment just now, but I'm so happy you've found us and be sure to visit itsan.org if you ever have any questions on this condition. Love lib

      Delete
  19. Wow, Libby, thank you for posting this. I was feeling depressed about the skin atrophy that is on my elbow right now from 2 weeks of hydrocortisone use, but reading what your partner Jake endured snapped me back to reality. I do hope my skin heals someday. More power to you and Jake.

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  20. This comment has been removed by a blog administrator.

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  21. I've been using prescription cream as mentioned for more that 20 years....although I eat well if I miss more than one day of an application for the cream my eczema flairs up. I've been a hostage to this all my life.. you mean to tell me if I stop using the Topical Creams for a while, endure the pain and itching my body will heal itself? further more... I don't think it's possible for me to ever be free of the use of the Topical Creams cause I'm my only Provider (financially) and have to go to work every day and can't miss work. I Don't have much supporting family or a support structure as Jake did (he is so blessed).... What would you suggest? I applaud Jake, he is truly my hero for beating eczema and love you guys for helping him through it.... Only god knows my Daily struggles, pain/stress I go through with this daily and only to know I will be a hostage to this for the rest of my life...
    Bless you both...

    Ramdasderrick @ Hotmail.com

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    Replies
    1. Hello :) So sorry to have left it so long to get back to you, We never really check the blog now... Glad you have found us and if you need any support you know where we are through the facebook site. Lots of love, Jake and Lib

      Delete
  22. To learn more about Skin Clinic in Delhi, and general information about skin care tips visit http://www.skindelhi.com/

    ReplyDelete
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    ReplyDelete
  24. Thank you so much for this blog a Treatments
    I honestly cried reading about Jake's suffering, because I could totally relate to it.

    ReplyDelete