Thursday, 4 April 2013

THE END.

If you are new to this blog please read carefully and follow the links. Look at the below green links then start Here and work your way through our story.



You can follow our Paleo lifestyle by the below links



Disclaimer: This blog is not a diagnosis, if you need medical advice please consult with a health practitioner.

Article & Evidance: Overuse of Topical Steroids in India
International Journal of Dermatology - Steroid Addiction 2008
Topical Corticosteroid Addiction Article 1993

This below link will provide a world of information and also forums for support.

NEW SKIN VS. STEROID INDUCED ECZEMA & STEROID WITHDRAWAL SYMPTOMS





Jake and Josh (Josh went through the same withdrawal as Jake) Both healed. 
4th May 2015 (Jake with his QLD tan xxx)



IT. IS. OVER.

My man, 3 years on <3 No Steroids, Eczema Free (11.01.15)






57 comments:

  1. Massive hugs to you both!
    You are absolute heroes.
    YAY!!!!!
    Xoxoxoxoxo

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    Replies
    1. Hey lovely lady, Thanks for the support.. we both send our love to you and can't wait to see the same post on your blog! xxx

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  2. AMAZING! What a transformation! SO PROUD AND HAPPY FOR YOU!

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  3. Great work guys. Really awesome.

    I have it in my eyebrows and I only used steroids for like 4 days. I have been eating super healthy (not even dressing on my salad) and following a holistic approach to all that I do for 2 years now and I am still losing my eyebrows due to flaking skin which was diagnosed as seb derm. I feel so defeated at times and the destruction of my self confidence has even made me distance myself from a girl that liked me. Do you have any advice or links that you can offer?

    Thank you for posting your story, it's inspiring.

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    Replies
    1. Hi, I'd suggest you see a Clinical Nutritionist and see what they have to say in terms of your own personal allergies/ intolerance's/ weaknesses.
      When Jake lost his mental health we received help from our lovely Margo who is at this site http://www.goandseemargo.net/
      You could find someone like her to help you with your self impression issues, I believe someone like herself does Skype sessions too but I am not sure of the cost.
      Perhaps try and find someone local.
      Know that you will heal, and check into the itsan.org website and visit their forum for other sufferers support.
      Good luck :)
      Libby

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  4. So happy for you two. Jake you look amazing... Way to go Libby... You guys rock.

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    1. Thanks heaps for the support! xx

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  5. It is so good to see this! This blog is the second one I saw about steroid withdrawal - before I ever found ITSAN. Thank you for doing this. You two helped save me from more suffering!

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    Replies
    1. Thanks for the support and good luck with your healing :) stay positive -
      Libby

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  6. We have only just found your website after 3 years of looking for answers to my partners skin problems. He has used steroid creams for 25 of his 27 years as his mum was given them when he was a baby for eczema. We are about to go cold turkey and have been using your story for inspiration and help. We have two children one is two and one is 12 weeks and would really appreciate any tips you have for anything you found useful during your time recovering. Without realising he has slowly weaned off the steroid as we now are on 1% hydrocortisone ointment. From what you have written we can only assume his flare ups in the recent years have been because he has gone from silicate medium strength to cucumber so assume that the flare ups were the beginning of withdrawals. Any help or advice you can give as we start our journey would be greatly appreciated? Well done to you and Jake for your progress it's an inspiration. X

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    Replies
    1. Hi there, So happy you have found us!
      First thing would be to go to read through the Q & A section on the itsan.org website.. I dont particularly agree with everything they convey in their foundation, but it is helpful for people just starting out.
      You can also join their forum and read through how others are dealing with their symptoms.
      Being a user for 25 years, and going through this process be ready for a long road ahead.
      Have a look at our friend Josh's blog, he is very positive and has some good info on there. Do a lot of reading! http://redskinrecoverydiary.blogspot.com.au/
      Make sure there is always nutritious food in the house.
      Only use 100% cotton clothing, we had 8 pairs of light pj's cycling through the wash for Jake, because you need to use a lot of moisturiser, and lots of changes of pj's will help for comfort day and night.
      Put an extra layer under the bottom sheet on the bed mattress to protect it from bodily moisture.
      Find a good moisturiser, we used a natural unscented one and mixed it with natural oil such as Almond Oil, Jojoba Oil, Avocado Oil. We stayed away from petroleum based moisturisers but some do find that to be the only thing that helps.
      TAKE PHOTOS of the progress and symptoms, not just so you can help others in the future but its so good to look at how far you have come when suffering such a long journey- it's good for the mental state.
      My email is libbywere@live.com.au
      If you have any questions you can contact me.
      Stay positive and connected to him. Comunicate with how you're both feeling, and have supportive friends or family come and visit when he feels he can take it, and make sure you take time for yourself, the process is quite suffocating.
      Get some Cod Liver Oil, Fish Oil, Vitamin B & D, and Magnesium to rehydrate the cells. Obviously the healthier you are the better off the body will be when trying to heal.

      Let me know if you need anything,
      Libby xx

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  7. I've been on the steroid withdrawal path forever it seems but seeing these photos of Jake really gives me hope. Kudos to both of you.

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    Replies
    1. Thanks heaps, don't give it, it really is amazing on the other side! :)

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    2. For sure, thanks for the encouragement. Quick question. Does Jake still maintain his strict diet after being healed?

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    3. yeah, we still do Gluten Dairy and sugar free, because its just that good for us. We both feel great on this diet so why stop?
      If we go out for dinner and something like hot chips are cooked in oil that has been used to cook gluten foods, we would eat the chips. Nothing happens to his skin, it's a good health choice.

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  8. WOW!!!HOW LONG FOR HEALING?I'm frighting for eczema around 5 years, a year ago I stop using cortisone.It's really hard!My skin was poor, after than,everything is go better!!I'm good now!!and also telling people stop use cortisone and how bad is it

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    Replies
    1. Hi, I've seen anywhere between 1-3.5 years for healing, depends on usage, addiction, adaptability and health of your body.
      Good luck,
      Libby

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  9. Just found your blog recently and read through your story. I am nearly 5 months into withdrawal and really look forward to life again. Absolutely amazing how Jake's body has done a total 180! I guess I just have questions about Jake's skin condition now that he's healed. Does he have issues with flares/reactions as a typical Atopic person does, or is it nearly non-existent?

    Both of your passion for life just oozes through your blog posts - in the care you take in the food you eat, the things you do together, and the smiles! I really have to say that Jake is incredibly lucky to have a partner like you, Libby.

    Congratulations to you both on making it to the finish line! You totally deserve it.

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    Replies
    1. Hey, its nearly non existant. His skin is normal, say if he is too hot his skin might look unsettled or if he was wearing wool straight on his skin it would irritate him... but thats the same as most people i'd say.
      He still touches his skin out of habit over the past few years, and if he touches it too much the skin might look annoyed- he just stops touching and it goes normal again. I don't really know to be honest, I don't take notice anymore.. he looks great all the time. Showers normally, doesn't moisturise, supel skin, weather doesn't seem to affect him..sticks to the good diet and minimal chemicals.

      Thanks for your support, good luck :)

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  10. Wow, that is amazing! I have a 1 year old with very bad eczema all over her body and I have been scouring the internet looking for answers - I just can't believe how hard it is to find reliable guidance :( I am now worried as we are being given increasing strengths of steroid and it really is not helping and we are getting dependent on it :(
    I have decided to start an online library of products that can help with eczema - because as far as the docs are concerned there is only one or two creams out there - when actually, since reading the internet pretty much 24/7 I am finding so much that people like me have no access to. Would love it if you could support us in the form of writing, reviewing or recommending products? My email is info@allergyhub.co.uk - would be overjoyed to hear from you,
    Leyla

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    Replies
    1. Hi Leyla, I sent you the topicals we used.
      Hopefully you can get your baby off steroids ASAP, its no joke this stuff, I know people who have only used for 3 weeks and have steroid induced eczema already. They have to go through all the pain that jake went through. Not only can steroids do this to you but there's a whole line of illness related to steroid use. Immunosuppressants are SO bad for you.
      I don't believe creams/oils are the cure to the (original) eczema, I really do believe you've got to treat the skin from internally, things like probiotics, fish oils, Glutamine.. It's all to heal the gut (which makes sense because the condition of the gut often reflects in the skin).
      Go to itsan.com and read about what the steroid is doing to your child, and there's a forum there where you can ask questions and other sufferers and mums/dads of sufferers will tell you all you need to know.
      Good luck, Libby

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  11. Hey do update us once in while! We do want to see what still happen next please!

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    Replies
    1. I'm sure I'll have a change of heart, but for now I'm done with posting. Now this is all over it's nice to just get on with our lives. Helping people is great, but we have shared the story and it's nice to now keep some privacy for ourselves... I've shared a lot of Jake's body on the internet and it's nice not to feel like he is an experiment im documenting anymore.
      I'm sure i'll post one day :)

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  12. I'm incredibly proud to call you both my friends. Your bravery in the face of adversity is incredible and you've given so many people around the world hope. I hope you take time to recognise what a difference you've made to the lives of so many.

    You will forever be close to my heart and I look forward to many years of friendship, rounds of golf and general good times.

    Loves you both.

    Josh

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    Replies
    1. Oh the love!!!
      You're the best Josh we love you so much!
      Keep being who you are and doing what you do, you inspire us heaps too son :)
      Friends for ever thats for sure <3
      xxxooo Us

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  13. Hi!

    Thanks so much for the blog and sharing your experiences with eczema.

    I have eczema too, and I just thought I would get in touch to tell you I have set up a small social network over at www.ecze.me.

    I think your experiences could be really valuable to others, and I would love for you to join.

    Hope to see you on Ecze.me!

    All the best,
    Jake

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  14. The good thing about taking the natural approach is that it's long term solution with positive side effects.

    I also like Pure Chimp Super Cream. I had to search hard to find it.

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  15. My 11 month old is on month 2 of withdrawal. His sleep has been bad the whole time but last night was so awful for him that I started crying too. Was there any indication in Jake that his battle with TSW was almost over? Did flares occur more/less often or last shorter/longer? Did the affected area gradual!

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  16. Looks amazing! congrats on your healing...

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  17. Amazing healing progress. Thank you for sharing this blog.

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  18. Amazing healing!! SO happy for you!!! :)

    I also have a similar eczema healing journey here: http://www.primephysiquenutrition.com/how-i-overcame-severe-eczema-when-doctors-said-there-was-no-cure/

    Wishing you all the best! Keep posting :)

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  19. Congrats on your healing...

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  20. Would you consider making and selling your moisturizer that you used? Or how to make it? haha I'm so lost and on Day21 of my healing. HELL! Also, what supplements do you think helped him the most?

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  21. Wow... Happy for you. but i am sure it is clearly over a year now. But did you use Triamcinolone Cream as well?

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  22. Hi Libby,

    This is so encouraging to see this!
    I have a close friend who suffer from serious eczema. He is a very nice guy, but because of his skin condition, it make me stop to move on to enter another stage of our friendship to become a couple.
    Can you please share with me, how do you overcome this? Thank you.

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  23. I would also suggest seeing someone about this steroid withdrawal symptoms. It defeats the purpose if the eczema treatment is only making things worse. See a doctor and hopefully they will have a better waning strategy for you. Good luck, it sure doesn't look like much fun to deal with. http://www.sesteinmetzmd.com/#!eczema/cipd

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  24. Hi Libbey, this comes late but I have been reading your blog as I am now entering my 2nd week of TSW. Noticed that u have given Jake vitamin B shots and wondering how that aids in TSW? Is that a factor in his significant recovery? Thanks so much! Desperately seeking help.

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  25. Yay, your experience with Eczema was horrible. What products did you use to treat it? Eucerin Eczema Relief Body Crème is becoming popular recently to prevent and soothe dry and itching skin caused by Eczema.

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  26. Hi you make good point about HEALING ECZEMA I never thought of that. Now – If any of you are struggling with ECZEMA, then I recommend you check out ECZEMA FREE FOREVER. The is a thorough review on it here Visit Eczema Free Forever I hope that helps some of you here at How to Cure Eczema Easily, Naturally and Forever! :)

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  27. Saw your news video. You guys are so misled. There is no such thing as addiction to steroids and withdrawal didn't cure your skin. You experienced a reaction and your skin got better through time. This would have happened had you taken steroids or not. I just shake my head at people who spend their lives creating sites based on anecdotal evidence. You really can't find a worthy cause to dedicate your time towards?

    ReplyDelete
    Replies
    1. Hi Mark,

      Sorry but you're wrong. I won't hold that against you - you just need to do some more research mate.

      Delete
    2. Hello mark, such a shame there are people out there like you who are so blinded to the world around you. You are the type of person that just takes what is told to you as truth and you accept it as such without looking into it and finding out for yourself. Such an old way of thinking and its sad there are still people like you out there. Well mark you can save this website on your computer and in 10 years time when steroid addiction is a known fact you can come back here and apologize. Until you realize the truth i wish you well as your life must be a very small one in a very small box.

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    3. This comment has been removed by the author.

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    4. Mark,
      Unfortunately the only person who is misled here is you.
      Topical steroid addiction is fast becoming recognised by the medical industry as reality and a grave mistake made my many doctors worldwide for far too long. Numerous scientific journals have been published supporting the theory.

      If you were passionate enough about your opinion on this matter to track down Libby and Jakes blog and make such a narrow minded and antiquated comment, then please also use this passion to research the human anatomy, physiology and cell biology. Learn also how drugs such as topical steroids interact with the body and the systemic impact they have on hormone production, gastrointestinal function, neurology and cardiovascular systems at a minimum. And if you think you already know about these… you’ve made it plain that you don’t.

      Libby and Jake’s blog was one of the earlier blogs to document the process of corticosteroid withdrawal. Since then there are literally thousands more blogs of other individuals who have cured steroid induced eczema by following the same methods, as well as many thousands more individuals who have not blogged their experience.

      To say you’re shaking your head is foolish. This is medical progress and you are being left behind….. (which is probably for the best!)

      Delete
  28. Mark - You're wrong. Steroid addiction is very real. We've all been duped by the multi-million dollar making pharmaceutical companies in to thinking steroids are safe, but they're not. It'll be common knowledge one day that eczema can be induced through the use of steroids, and the issue will be revealed as one of the biggest cover-ups in the last century.

    ReplyDelete
  29. Mark,
    I rarely get involved in comment replys and responses to muppets, but this is personal.
    What's pissed me off the most is that you can sit there and say that this blog is a waste of time and not a worthy cause to dedicate our time towards!? Your naive comment and lack of knowledge on this subject is evident and your attempt to be a smart arse in your statement only makes you look like a complete and utter moron with no knowledge on this subject at all. Take it from someone who has been through this horrific experience, steroid induced eczema is a thing. You are correct, my skin had a reaction and got better over time. It got better after STOPPING the steroid. Mmmm. I hope you can open your eyes and look at what the reality is suggesting through life experiences, 1000"s of them. The fact you / others can critises the process doesn't surprise me anymore. People like you who lack knowledge and that are just another sheep in the flocks of life existing all over the world are all too rife. How dare you fucking come on here and call this blog a waste of time , this makes me furious and I feel my inner man bubbling inside ready to get physical.
    My response is emotional cause your comment was personal. I want an apology , not for your naive stand on steroid enduced eczema, but for calling this blog a waste of time, also, for saying my beautiful partners hard work and dedication creating this blog that saves lives and is changing lives world wide was a waste of time and not a worthy cause of her precious time. Fuck you.
    From Jake and all those going through and that have been though this horrific experience caused by incompetent pharma and Drs, real men and women that went/going through this real thing called steroid withdrawal

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  30. Hello Jake, I saw you on TV a month ago and I wanted to tell you that there is a Doctor who really understands the rebound symptoms and try to help people with their painful journey to come off steroids. He clearly says"TSW " Topical steroid withdrawal " and going cold turkey is not the way. I want to share this page with you and everyone. http://drwheatgrass.com/conditions/eczema/steroid_withdrawal/easing-the-pain-of-topical-steroid-withdrawal
    Hope you are doing well and all the best.

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  31. First of all, fuck Mark. He's just a troll who doesn't know what he's on about. Secondly, thank you so much for this blog! It really gives me hope that I will eventually heal my eczema.

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  32. So it's now 2016. I've been normal now for almost 2.5 years and it's been a huge relief. But in the last month or two, I've been having some flare-ups again on my hands and it's scary to think that I might be going through another cycle of steroid withdrawal. But for all I know this could be regular eczema. But I thought I'd ask if Jake has been experiencing any flare-ups at all in the last while or so.

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  33. Hi there!
    Did you do any kind of chemical peel to get rid of the damaged skin?
    I had some issues with corticosteroids in the past but my skin has not fully heal, it is still thin and sensitive.

    Regards,

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  34. Big congrats and thank you for sharing your success story which definitely gives me hope as I am battling the condition right at this moment.

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  35. My husband suffers from eczema and has been using foderma serum twice a day. It took him 3 weeks to try it because he is very traditional and stubborn and thinks that oatmeal cures all. Even though it never cured his eczema. He humbly admitted that his eczema is gone!!! He'll never switch and the Mrs. has new cred.

    ReplyDelete
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    ReplyDelete
  38. So far, Foderma serum is the only treatment to successfully curb my mild eczema. I've tried several prescriptions, all of which have either proven ineffective or negatively reactive to my sensitive skin. I use this serum every morning, and have had great results.

    ReplyDelete